The Families with Diabetes Community Page

Welcome to the Families with Diabetes Community page This is a page dedicated to the type 1 diabetes community.  There are lots of great things happening in your communities and this page is here to champion the great things that you are all doing to support people and families living with type 1 diabetes.  There are films, blogs, podcasts, support groups and much much more. The content on this page is from you, and for you and hasn't been through a clinical approval cycle.  All submissions will be vetted for appropriateness before being published

 

Would you like to be featured on this page?

The content on this page is from you, and for you so if there is anything that you’d like to submit then download & follow the guidelines below.

All submissions will be checked for appropriateness before being published.

Download the guidelines here

Looking forward to receiving  your submissions.

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Do you want to know how the National Children and Young Peoples Diabetes  Network is working hard to improve diabetes care year on year?

The following 2 films explain the National Paediatric Diabetes Audit (NPDA) findings and how care has improved over the last 10 years as well as how patients and families report their experiences:

NPDA - 10 Year Results

NPDA - 10 Year Results

NPDA - PREM Results

NPDA - PREM Results

Signposting & Support

In the following pages you’ll find lots of information and support to help with everyday management.

This is an ever-evolving section with new areas and resources coming soon.

If there is something you need to know then get in touch with us at hello@digibete.org and we can include it here for you.

Featured Films

Here are a selection of our latest featured films.

If you have a film you’d like to share then download & follow the guidelines here on how to send your submissions and we’ll check it and get it ready to be featured.

T1D In Lockdown

A group of young people share what it's like managing T1D in Lockdown.

Benji's Story - My Life with T1D

Benji is 13 years old and this is his T1D story in his own words

Diagnosed In Lockdown

Kelly & Skye talk about diagnosis in lockdown

Featured Blogs

In this section we’ve highlighted some popular blogs all about living with type 1 diabetes.

If you know of any other blogs or vlogs, or maybe you have your own, then send them our way so that we can feature them here.

Follow the guidelines here and we’ll check it and get it ready to be featured.

Featured Podcasts

In this section we’ll highlight some popular podcasts by people living with type 1 diabetes, about living with type 1 diabetes.

If you know of any other podcasts, or maybe you have your own, then send them our way so that we can feature them here.

Follow the guidelines here and we’ll check it and get it ready to be featured.

The Barbara Jackson Community Star Award

Barbara Jackson was an amazing lady and knew how challenging it was to grow up with type 1 diabetes and had been supporting her family living with the condition for a number of years. Barbara had a huge heart, and raised money for lots of good causes.  She was also an early supporter of DigiBete and did all she could to help us access the vital early funding needed to create our school resources.

Sadly Barbara passed away in January 2021 and in her memory we have created the Barbara Jackson Community Star Award to celebrate her achievements. This award will be presented each year to a young person who is going out of their way to improve awareness and support to others living with type 1 diabetes in the community.

The details on how to nominate your community star will be published here soon.

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Do you want to know more about the Families with Diabetes National Network (FWDNN)?

The Families with Diabetes National Network is a network of the parent reps from each regional network of the country. We are recruited by the network co-ordinators in each region and we all have children with diabetes and attend network meetings in our regions to represent the views of families living with diabetes.

More about the Families with Diabetes National Network:

We believe it is important to have ‘Family’ in our name as a diagnosis of diabetes in a child has an effect on the whole family, mothers and fathers but also brothers, sisters and grandparents. We are run independently and managed by parents and meet twice a year at the National Children and Young People’s Diabetes Network meeting and regularly throughout the year by Skype.

We represent a wide variety of families across all eleven regions. Families’ views are sought by a number of methods including Facebook groups for each region, local support groups and through clinics. Facebook enables us to reach families not engaged in more formal meetings and also allows sharing of regional and national documents. We provide a parent voice to the National Children and Young People’s Diabetes Network and share good practice between parent representatives across the regions.