Families with Diabetes Community Page
Welcome to the Families with Diabetes Community page. This is a page dedicated to the type 1 diabetes community. There are lots of great things happening in your communities and this page is here to champion the great things that you are all doing to support people and families living with type 1 diabetes.
Signposting & Support
In the following pages you’ll find lots of information and support to help with everyday management. This is an ever-evolving section with new areas and resources coming soon. If there is something you need to know then get in touch with us at hello@digibete.org and we can include it here for you.
Groups In Your Area
Here you will find links to a range of different national groups and those in your area.
Marketplace
Here you’ll find links to people and organisations who sell resources and products to help with the self-management of type 1 diabetes.
Legal & Support
Here you’ll find useful links to organisations and resources that can help offer assistance if needed.
Type 1 Diabetes Awareness
Diabetes Stories
Featured Podcasts
In this section we’ll highlight some popular podcasts by people living with type 1 diabetes, about living with type 1 diabetes.
If you know of any other podcasts, or maybe you have your own, then send them our way so that we can feature them here.
Type 1 on 1
Jen Grieves dives into the challenging world of life with type 1 diabetes.
The Talking Type 1 Podcast
The Talking Type 1 Podcast is an award-winning type 1 diabetes podcast by Daniel Newman.
Living with Diabetes
A mix of expert insight and lived experience.
The Type 1 Movement Podcast
Practical tips and motivational content on how to live the healthiest life possible.
Jamie and the Broken Pancreas
Honest, informal, relatable stories.
Diabetes Discussions
Wide-ranging topics, expert and patient voices.
Diabetes Chat
Wide range of interviews every Monday
My Diabetes Story
Weekly chats on Tuesdays with the type 1 community on Instagram.
KarMic: Unapologetically Partha
You Tube interviews for adults, families and wider NHS discussions.
Featured Blogs & Vlogs
HypoBaby
This is a blog written by the parents of a baby living with type 1 diabetes.
Actual Mummy
This blog is written by Helen Wills who has a teenage daughter with type 1 diabetes.
Nerdabetic
Nerdabetic has a vlog all about type 1 and technology
Breakthrough T1D
Here is a selection of articles from Breakthrough T1D
Diabetes UK
Here is a selection of articles from Diabetes UK
Featured Films
Douglas Cairns - Flying With Type 1 Diabetes
Meet Douglas as he shares his story of his life as a pilot with Type 1 Diabetes.
Reel Life with Type 1 Diabetes
Hear Matthew\'s story about living with Type 1 diabetes.
Dan's Story
Meet Dan as he talks about his life living with Type 1 Diabetes
The Families with Diabetes National Network (FWDNN)
The Families with Diabetes National Network is a network of the parent reps from each regional network of the country. We are recruited by the network co-ordinators in each region and we all have children with diabetes and attend network meetings in our regions to represent the views of families living with diabetes.
Meet the FWDNN Chairpersons:
Contact Jenny Dias and Kate Cullen at: familieswithdiabetesnn@gmail.com
What Is The FWDNN?
This short film explains what the Families With Diabetes National Network is and does.
More about the Families with Diabetes National Network:
We believe it is important to have ‘Family’ in our name as a diagnosis of diabetes in a child has an effect on the whole family, mothers and fathers but also brothers, sisters and grandparents. We are run independently and managed by parents and meet twice a year at the National Children and Young People’s Diabetes Network meeting and regularly throughout the year by Skype.
We represent a wide variety of families across all eleven regions. Families’ views are sought by a number of methods including Facebook groups for each region, local support groups and through clinics. Facebook enables us to reach families not engaged in more formal meetings and also allows sharing of regional and national documents. We provide a parent voice to the National Children and Young People’s Diabetes Network and share good practice between parent representatives across the regions.
Would you like to be featured on this page?
The content on this page is from you, and for you so if there is anything that you’d like to submit then download & follow the guidelines.
All submissions will be checked for appropriateness before being published.
Submission Guidelines
Please note, the links on these pages are provided for awareness, ease of access and information only. These are popular and well used but DigiBete and the Families With Diabetes National Network do not monitor these and therefore do not take any responsibility for their content.
Do you want to know how the National Children and Young Peoples Diabetes Network is working hard to improve diabetes care year on year?
The following 2 films explain the National Paediatric Diabetes Audit (NPDA) findings and how care has improved over the last 10 years as well as how patients and families report their experiences.
NPDA - 10 Year Results
NPDA - 10 Year Results
NPDA - PREM Results
NPDA - PREM Results